Caregivers
Portal
Caregivers
Portal
When someone suffers a spinal cord injury, the entire family is impacted. It is life-changing, and it can be overwhelming. In most cases, the role of primary care giver is taken up by a family member. It’s a 24-7 position that comes with no training. The Caregivers Portal provides support to the unsung heroes who take up the mantle of caregiver.
It starts with our Caregivers Working Group, which serves as a sounding board in developing programming. Empathy and compassion stand at the core. Patience, effective communication, and problem-solving are critical skills in delivering quality care. Our goal is to provide the support and connection to resources that allow caregivers to attend to their own needs, too.
This program is made possible through the generous support of the Edgar Snyder and Associates Foundation
Social
Activities
Some days you need a fun day out, whether it’s attending a sporting event or one of our other gatherings.
Peer-to-Peer
Experiences
It’s important to share ideas and resources with other caregivers, whether it’s through web meetings or at our immersive retreats at the Woodlands.
A Caring
Community
Through our Facebook groups, caregivers can keep in touch and create an online community.
Social
Activities
Some days you need a fun day out, whether it’s attending a sporting event or one of our other gatherings
Peer-to-Peer
Experiences
It’s important to share ideas and resources with other caregivers, whether it’s through web meetings or at our immersive retreats at the Woodlands
A Caring
Community
Through our Facebook groups, caregivers can keep in touch and create an online community
Caring for a person with a spinal cord injury (SCI) is a demanding job. Caregivers may face physical challenges such as lifting and moving the SCI individual. Additionally, caregivers often face emotional challenges such as dealing with the person’s frustrations and feelings of loneliness or isolation. Caring for a person with an SCI can be expensive, and the stress related to the cost of necessary equipment, therapies, and medications can build quickly.
Our Caregivers Working Group provides an opportunity for caregivers to connect with others who are in similar situations. They can share their experiences and offer advice and support to one another. They can also find comfort in knowing that they are not alone in their struggles.
– John
