RESOURCES

Pennsylvania

Adam Taliaferro Foundation: Helping athletes who suffer spinal cord injuries. This foundation provides emotional, financial and educational support to individuals who suffer catastrophic head or spinal injuries in NJ, PA, or DE. This foundation also provides educational and financial support related to the research, prevention and care of such injuries. 

Adaptive Outdoorz: A journey formed to bring the disabled community together and to prove that a disability does not define a person. 

After the Injury: Developed by an interdisciplinary team of researchers and practitioners with expertise in pediatric injury, child health care, and traumatic stress at the Center for Injury Research and Prevention at the Children’s Hospital of Philadelphia. 

Children’s Hospital Pittsburgh Foundation: The mission of Children’s Hospital of Pittsburgh of UPMC is to improve the health and well-being of all children through excellence in patient care, teaching and research. 

Fighting Back Scholarship Program: Created in 1989 to assist individuals who have suffered a life-changing illness or injury, and are without the finances needed to participate in a rehabilitative exercise program. Our first mission is to provide financial scholarships to be used for individualized exercise rehabilitation. These scholarships are awarded based on financial need to those who have demonstrated the attributes consistent with our mission statement.

Good Shepherd Penn Partners SCI Support Group: It provides an interactive forum for people to share their ideas and experiences. Focuses on peer relationships, fitness, and educational opportunities for individuals looking to regain function and independence. 

Good Shepherd Spinal Cord Injury Support Group: It allows SCI individuals to meet and socialize with others with similar conditions. There is no cost, and no doctor prescription is required. 

HelpHOPELive: A 501(c)(3) nonprofit that helps patients and families facing transplantation or catastrophic injury develop personal fundraising campaigns to support their ability to pay for uninsured medically related expenses.

Individual Abilities in Motion: Focused on the positive development of people. Works to offer support for individuals in realizing their fullest potential and help them live the richest lives possible. 

Mighty Penguins Sled Hockey: To provide individuals with physical and/or cognitive disabilities the opportunities to participate in therapeutic and competitive sled hockey, an adaptive form of ice hockey.

Miracle League of Blair County, Inc: To maintain a charitable organization that provides children and youth with mental and/or physical challenges an opportunity to play baseball as a team member in an organized league to give these players an opportunity to suit up in a uniform, to step up to the plate and enjoy the game of baseball in the purest form.

Pennsylvania Assistive Technology Foundation: Provides financing opportunities, education, and advocacy for people with disabilities and older Pennsylvanians, helping them to acquire the assistive technology devices and services that improve the quality of their lives.

Philadelphia PowerPlay: Mission is to provide a community based competitive athletic experience for people who use power wheelchairs in their daily lives. 

Rise Again: A 501(c)3 nonprofit organization that supports individuals with spinal cord injury or illness to believe and reach beyond expectations. They also provide grants to professionals and organizations who focus on improving the quality of life of those affected by spinal cord injury or illness. 

Steelwheelers Inc: The Pittsburgh Steelwheelers supports co-ed wheelchair basketball, wheelchair rugby, and wheelchair track/road racing events with the goal to enable all members to develop the sense of well-being that comes from being physically active and involved in the community.

The University of Pittsburgh Model Center on Spinal Cord Injury: UPMC-SCI provides a continuum of care beginning with emergency response, continues with comprehensive acute medical treatment and rehabilitation, through utilization of assistive technology services and vocational rehabilitation.

United Spinal Association Greater Philadelphia Chapter: This nonprofit organization provides a network of support for individuals and families living with spinal cord injuries/diseases. It helps people through on-going advocacy, support, socialization, education, and research. 

UPMC Center for Assistive Technology: A joint program of UPMC and the University of Pittsburgh, the Center for Assistive Technology has emerged as a leader and innovator in the assistive technology field. Includes: mobility products and services, communication products and services and comfort products and services. 

UPMC Rehabilitation Institute at Mercy: As part of the largest rehabilitation network in western Pennsylvania, the UPMC Rehabilitation Institute offers specialized, inpatient care for a variety of conditions, including spinal cord injury.

Variety: Variety creates meaningful and memorable experiences that result in increased independence in school, community, work, and family life for children and youth with disabilities.

Woodlands Foundation Inc.: The mission of the Woodlands is to enrich the lives of children and adults with disability and chronic illness in western Pennsylvania.

Outside Pennsylvania

Andee’s Army: Is an Atlanta-based 501(c)3 nonprofit dedicated to funding the recovery and rehabilitation of children who have sustained brain and spinal cord injuries. 

American Spinal Injury Association (ASIA): Group of medical and other professionals engaged in the treatment of spinal cord injury: to promote and establish standards for health care and education, foster research, and facilitate communication between members. 

Backbones: BACKBONES exists to help people with spinal cord injury or disease (SCI/D) and their families connect with their communities. They do that by creating events and experiences that promote awareness and engage people of all abilities.

BACKBONES is a federally recognized 501(c)(3) non-profit organization.

Brain and Spinal Cord: A resource to help brain and/or spinal cord injury survivors and their families learn more about medical conditions, rehabilitation, and legal options that can support long-term financial stability.

Canadian & American Spinal Research Organization: It is dedicated to the funding of targeted research to maximize functional recovery and cure paralysis caused by spinal cord injury. It also helps to reduce spinal cord injuries through prevention and awareness programs. 

The Chris Norton Foundation: A nonprofit organization dedicated to helping people with spinal cord and neuromuscular disabilities live their best lives. By making a donation and helping us spread awareness, you’re bringing invaluable tools, therapies, adaptive camps and research to millions of people. 

Christopher & Dana Reeve Foundation: The result of a merger of the American Paralysis Association and the Christopher Reeve Foundation, the organization supports research to develop effective treatments and a cure for paralysis caused by spinal cord injury. It provides a comprehensive source of information for people living with paralysis and their caregivers. 

Conquer Paralysis Now: Funds scientific research, medical treatment, rehabilitation, and technological advances lead us toward a cure- whether through positive breakthroughs or failures that help guide the next effort. 

Greater New York Chapter of the National Spinal Cord Injury Association: A non-profit 501(c)3 organization, whose mission is to help people rebuild their lives after spinal cord injury by providing resources, services and peer support to survivors and their families.  

Inspired Spinal Cord Injury Support Forum: An online spinal cord injury community that was designed to promote a positive outlook for those with Spinal Cord Injury. Members of the site are able to connect others to share experiences and support each other.

Mission for Miracles: a 501c3 non-profit organization that supports medical facilities treating spinal cord injury, traumatic brain injury and other neurological conditions recovery research facilities working on a cure for these life-changing injuries. ​ Mission for Miracles was inspired by the recovery of Meg Throckmorton from a devastating spinal cord injury.

Score Fund: Assist with the out-of-pocket costs for items such as home modifications, vehicle adaptations and medical co-payments for spinal cord injury. Gives preference to young people injured while participating in sports. 

South Carolina Spinal Cord Injury Association: Helps South Carolinians with spinal cord injury live healthy, independent lives through providing specialized resources, advocacy, and peer support. While based in South Carolina, the website is a valuable resource for people with Spinal Cord Injury and their families.

Spinal Cord Injury Nurse Advice Line: A phone service provided by the outpatient clinic at Craig Hospital, a Model Systems Hospital for people with spinal cord injury. This service provides a dedicated nurse to answer non-emergent calls Monday-Friday between the hours of 9 a.m. – 4 p.m. Nurses at Craig Hospital have the experience to help identify potential complications before they become serious health issues. 

Spinalpedia: A social mentoring network and video archive allows the SCI community to motivate each other with knowledge and triumphs gained from our individual experiences. 

The Miami Project to Cure Paralysis: This organization was established in 1985 with the help of Barth A. Green, M.D. and NFL Hall of Fame linebacker Nick Buoniconti after Nick’s son, Marc, sustained a spinal cord injury during a college football game. The Miami Project is a Center of Excellence at the University of Miami Miller School of Medicine. It is considered the premier investigative research program conducting cutting edge discovery, translational, and clinical investigations targeting spinal cord and brain injuries. Since its inception, research at The Miami Project has changed the landscape of knowledge and therapeutic strategies for spinal cord and traumatic brain injury. 

Travis Roy Foundation: Dedicated to enhancing the life of individuals with spinal cord injuries and their families by providing adaptive equipment and to finding a cure through increased funding of research, resulting in self-reliance and the ability to be as independent as possible. 

Understanding Spinal Cord Injury– Video Resource: A video resource developed by the Shepherd Center, a Spinal Cord Injury Model Systems Rehabilitation Hospital. The videos cover important topics on recovery using simple language and feature people living with spinal cord injury, as well as medical experts and advocates.